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Dec - Jan 2019

Cancer Risks in PI Patients

A commonly held concept is that when the immune system malfunctions, "immunosurveillance" (the ability of the immune system to look for infections and cells developing into cancer) declines and, thereby, the risk increases for a developing cancer to go undetected. Hence, an increased risk for cancer in patients with primary immunodeficiencies (PIs) seems logical. This article explores the risks for cancer in PI patients... full article

Autoimmune Encephalitis: The 'Brain Under Attack'

In 2017, Duke Health, a world-class academic and healthcare system, posted an article titled "Brain Under Attack." It chronicles the four-year journey to diagnosis of a 14-year-old boy, Lucas Quinones-Reed, who began developing baffling symptoms, including trouble speaking, walking and reading, a plummeting IQ, anxiety and violence. Lucas' parents took him to numerous hospitals on the East Coast, but because of an inability to diagnose his symptoms, he was repeatedly admitted to psychiatric wards. Fortunately for Lucas, his father, who has an advanced degree in psychology, was convinced Lucas' symptoms were neurological rather than psychological... full article

Discrimination and Patient Rights

Anyone diagnosed with an invisible chronic illness has likely had to confront the perception that they don't look sick. When the sentiment is expressed by family or friends, it is undoubtedly frustrating. But, when doubt about diagnosis creeps into conversations about job performance, access to care or the need for special accommodations or medical leave, the repercussions can have far more serious consequences for both chronically ill patients and their families... full article

The Role of Vitamins and Minerals in Immune Deficiencies and Autoimmune Disorders

Admittedly, vitamins and minerals are extremely popular in the United States. The 2017 Council for Responsible Nutrition Annual Survey on Dietary Supplements shows a majority of American adults takes supplements and three-quarters report taking a vitamin and mineral supplement at least once in the prior year... full article

Subcutaneous Immune Globulin Maintenance Therapy for CIDP: An Idea Whose Time Has Come

Most often diagnosed in people between 40 years and 60 years of age, chronic inflammatory demyelinating polyneuropathy (CIDP) is a relatively rare immune-mediated peripheral nervous system disorder that results in variable loss of grip strength and upper and lower limb weakness... full article