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Oct - Nov 2018

Making Connections in the PI Community

Primary immunodeficiency diseases (PIs) affect people in different ways, but like anyone living with a chronic illness, individuals living with PI tend to battle feelings of isolation. In addition to seeking out the most effective treatment plan, it is vital to identify ways to reach out to others who are facing similar challenges. According to the Immune Deficiency Foundation (IDF), ... full article

Planning for Retirement with Chronic Illness

If you are like many Americans, you may not be preparing for retirement. A survey conducted by Money magazine in 2016 found one out of every three Americans has no savings, and 23 percent have less than $10,000 saved. This figure is particularly alarming since retirement is one of the biggest life expenses, even without a chronic illness... full article

Managing Complications of Chronic Systemic Corticosteroid Use

Corticosteroids are produced in the adrenal glands of the human body. They are important hormones that serve significant physiologic purposes in the regulation of the metabolic and immunologic systems. Their natural levels fluctuate throughout the day, and their production and release are highly regulated by the hypothalamus and pituitary glands... full article

Good's Syndrome: A Rare Disorder Associated with PI

Also known as immunodeficiency with thymoma, Good's syndrome (GS) is a rare, adult-onset primary immunodeficiency (PI) characterized by low immunoglobulins (hypogammaglobulinemia) and a benign thymic tumor (thymoma). Eosinophils (white blood cells) may also be very low or undetectable in these patients... full article

Expanding Uses of IVIG

The list of conditions that intravenous immune globulin (IVIG) may potentially treat has grown exponentially since its first use to treat primary immunodeficiency disease (PI) in 1952. It is known IVIG protects against infections, modulates the immune system and reduces inflammation,1 but it's not entirely understood why it works, not only for diseases it is approved to treat, but for many others that have failed to respond to conventional treatments.... full article