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Posted on 21. November 2014

Let It Out

Let It Out

By Rachael Watson

Time is spent wondering, waiting, wishing, whilst emotions overflow
No matter how hard I try, sometimes progress will be slow
The most frightening moment of my life, happened a year ago today
It made me feel so lost as thoughts started to replay

My independence was quickly taken away
I'm not sure how to cope with it, but I'll find a way
I still don't really understand it all
All I know is it's going to be a long haul
It's the simple things in life that I miss so much
I've forgotten what it feels like as I'm a bit out of touch
There's no normality as everything that I used to do is on hold
My future is so unknown but I've got to be brave, I've been told

Tears fall quietly when no one's there
Sometimes it's all just too much to bear
It's easy to put on a brave face and smile
Some days I would like a hug once in a while
So many people seem to have an opinion about how to handle it
They'll never understand the day-to-day challenges one bit
Family and close friends are important, so show appreciation
They stick by you during times of depletion

Long stays in hospital are never nice
Especially when there's no one your age to ask for advice
Being the youngest patient on the ward is extremely boring
There is a need for a purpose built facility which some people are ignoring
Even if your symptoms are similar but the diagnosis isn't on the list
You don't get access to a particular service, meaning you just have to persist
The system has specific criteria and guidelines to determine correct allocation
Spending a long time in geriatric rehab doesn't prepare you for adaptation

There's not enough research into this rare condition
I wish I could find a cure but it's a big ambition
Please donate blood as the infusions are helping me get better
Your donation saves lives so become a trend setter!
Already having multiple conditions, complicates the situation
I might be the only one in the world which just increases the isolation
It's really debilitating having chronic pain
There's no quick fix so you just have to maintain


I've had a lifetime of surgeries and therapies to increase functional capability
I'm having to start from scratch again but hard work will create a life full of possibility
It affects so much more than what people think
Many people are just oblivious and completely out of sync
Everyone's recovery is different and never the same
I just want to walk again as that's my aim

I'm also doing intensive physio at Making Strides
I love that place as it sends great vibes
The sessions are tough but exercise is crucial
New muscle activation or movement is extremely useful
It takes a lot of patience and repetition to make a breakthrough
Spending every second, minute, hour, if that's what it comes to

For scenarios not in a textbook, some people really struggle to work it out
To receive service of an exceptional or even acceptable standard,
sometimes you really have to scout
At times the healthcare system claims to provide adequate support,
which is a statement that is quite bold
Most pediatric services are great, but why isn’t there sufficient follow up for
adults young and old?

There's lots of adaptive equipment and assistive devices to make you less reliant
It's there to help you if you need it in the interim, so just don't be defiant
There needs to be an investment into the public and private sector which people may embrace
Enough specialized services to assist with a regular or complex case
Every now and again you come across someone who goes above and beyond
They help you become who you are today, I just can't find the right words to respond

There's a huge lack of services for young adults with needs
Why can't this change even though society pleads
Spend 24 hours as a caregiver to gain a small insight into what it's like
It's hard work with many hours unpaid but you can't just go on strike
The services are under resourced and many just don't fit
Please government, do something about it
I'm extremely grateful for any assistance I receive
I just wish there was more that could be done to relieve
The nation needs more education on access and inclusion
It might minimize the misunderstanding and confusion
There's a lot of stigma around the world of disability
Many people have a lot of versatility

People receive lots of support if the are popular or well-known
Spare a thought for those who have to do it alone
People's circumstances are different so don't be so quick to criticize everyone
Just make the most of each opportunity to reap the rewards in the long run
You're not an inspiration if you've won awards and accolades
You're someone special when you persevere whilst jumping over barricades
That's not to say you should be applauded every time you do something with your day
Maybe some people just have no idea what to say

I don't want sympathy, I just want respect
I'll achieve my goals, no doubt I'm correct
I never give up as I'm very strong willed
I'll protect my dreams so that I make sure they're fulfilled
There are so many things that I still want to do
Sometimes you just miss out and end up still waiting in the que
There is always going to be someone who is worse off than you
So be thankful for what you have but set standards to live up to
When things keep going downhill, you start expecting more and more bad news
You desperately hope to hear something good soon and people's positive views
Life hasn't been easy but I make the most of it
You can't always change what happens so just keep going and don't quit

It's been a pretty lonely journey but it just goes to show
People either stay with you or get up and go
There's so much more that I could say but I'll keep it brief
At least things are improving so that's a relief
Sometimes it just can't be explained with so many questions remaining
Why some recover and others don't, either way it's very draining
It's been a terrible year filled with heartbreak and no fun
I really hope next year is a better one

All I know is in my life I want to help people, because I care
It doesn't matter what it is as long as it's not unfair
Even if it's not appreciated, it's still rewarding to know you're trying
To make a difference in their life and to see them laugh instead of crying
It could be a simple and boring task or one that holds high responsibility
Either way, you should do it properly with enthusiasm and amiability

The piano isn't just a musical instrument
It's a way of expressing yourself when words are too difficult
Writing my thoughts on paper might not make much sense
Compose a song and suddenly people take interest
I let it out in a book to try put my mind at ease
Words are written from the heart then played across ivory keys

  more
Categories: People We Admire

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2015-10-01 PANDAS/PANS Awareness Week 0 None
2015-08-27 Relocating: Steps to Success 0 4
2015-07-09 A Look Back at the IDF National Conference 0 4
2015-06-24 The Road to New Orleans 1 3.5
2015-02-19 What to Expect During a Complete Neurological Exam and Workup 0 None
2015-02-05 Is an Infusion Port Right for You? 21 4
2015-01-22 Weaning IVIG Therapy for CIDP 2 None
2014-12-19 Embracing What Is 0 None
2014-12-04 Managing IVIG Therapy for CIDP 1 5
2014-11-20 Juggling Work and Chronic Illness 2 5
2014-11-06 IVIG 101 2 5
2014-10-23 Starting a Patient Support Group: A Rewarding Experience 1 5
2014-10-09 IVIG Side Effects: When to Seek Medical Attention 17 4
2014-09-18 2nd Place Essay Contest Winner - The Other Side of the Knife 1 5
2014-09-11 Side Effects of IG Therapy: How to Prevent and Manage Them 32 3.3
2014-08-29 Specialty Tiers and the Chronically Ill 13 5
2014-08-14 Back to School with PI 0 5
2014-07-31 Seeing Yourself as Healthy 4 5
2014-07-17 Creating Connections 5 None
2014-07-03 A New Independence 3 5
2014-06-26 A Call for Open Access to Medical Journals 6 5
2014-06-19 The Words We Use: Language and the Patient Experience 2 4.5
2014-06-04 Some Doctors Are Worth Stalking 3 5
2014-05-29 Vacation Dread? 4 5
2014-01-16 Starting a Support Group 4 None
2014-01-09 Constant Guilt 7 5
2014-01-02 Our Friends, Our Village 2 5
2013-12-26 Resolution Reality Check 2 4.5
2013-12-19 Grateful to be Grateful 2 5
2013-12-12 Ten Strategies for an Illness Free Holiday 2 5
2013-12-05 Friendship: The Best Thing in Life 2 5
2013-11-21 Lightning Can Strike Twice ... or More Often 1 5
2013-11-14 There Is No Normal 0 5
2013-11-07 And So it Begins 0 5
2013-10-31 A Good Deed Never Goes Unrewarded 1 4.8
2013-10-24 Role Reversal: My Journey from Caregiver to Patient 2 5
2013-10-17 Don't I Know You From Somewhere? 1 None
2013-10-09 Coping With Loss 1 5
2013-10-03 Update: Disneyland No Longer Issuing Disabled Passes 1 5
2013-09-26 Be the Change 1 5
2013-09-19 Essay Contest 2nd Place - I am a Patient 3 5
2013-09-12 Essay Contest Winner! - A Father's Pride 5 5
2013-09-05 Perception 2 4.5
2013-08-29 Defining a Miracle 3 5
2013-08-22 The Impoliteness of Strangers 5 4.7
2013-08-14 Having Friends Who Understand Makes Me Feel Better 4 4.8
2013-08-08 Location, Location, Location: Deciding Where to Live with Chronic Illness 9 5
2013-08-01 Kindness Can Change the World 2 4.8
2013-07-18 Using Power for Good 1 None
2013-07-11 Hello Baltimore! 3 5
2013-07-03 A Journey of a Thousand Miles 2 5
2013-06-27 Dating Doctors 4 4.2
2013-06-20 Looking on the Bright Side 6 4.7
2013-06-06 Taking Advantage of our Disadvantages 7 5
2013-05-29 Road Blocks 9 5
2013-05-23 Vulnerability and the Zombie Apocalypse 6 5
2013-04-25 Indebted to the Doctor Who Saved My Life 6 3.6
2013-04-18 (Don’t) Put on a Happy Face 10 4
2013-04-04 Get the Word Out 4 4.5
2013-03-21 Sitting Bedside 1 5
2013-03-07 Coping with Diagnosis: A Journey of Acceptance 3 5
2013-02-27 IG Living Third Annual Essay Contest! 1 None
2013-02-21 The Last Best Cure 0 4
2013-02-07 The Balance Between Education and Illness 0 3.7
2013-01-31 Torn: What to Do When She Is Sick 1 5
2013-01-24 The Joys and Challenges of Parenting Teens 0 5
2013-01-17 New IGL Teen Supports Kids with Chronic Illness 0 5
2013-01-10 Lab Day Escapades 2 4.5
2013-01-03 Five Ways to Fight Fatigue 6 2.7
2012-12-27 Set S.M.A.R.T. Goals 3 3.3
2012-12-12 Here’s How You Can Help 1 4
2012-12-05 Invisible in a World of Wellness 10 4.5
2012-11-28 Dispose of Stress 2 3.5
2012-11-19 Giving Thanks 5 5
2012-11-15 When Life Hands You Lemons 5 2.6
2012-11-08 Leave Worry for Another Day 5 5
2012-11-01 Never Give Up! 2 4.2
2012-10-25 Avoid Holiday Season Sniffles 0 1
2012-10-18 Confronting Chronic Rudeness 10 5
2012-10-11 Why Being a “Good Patient” May be Bad for Your Health 3 None
2012-10-04 Healing Hearts through Paws 5 4
2012-09-27 The Journey of a Single Step 4 5
2012-09-20 The Journey of Risks 1 5
2012-09-13 Lessons from the Deep 2 5
2012-09-06 Let's Get Connected 11 5
2012-08-30 Mirror Image 1 None
2012-08-23 Olympic Fever 0 None
2012-08-16 Do the Consumer Protections Under Healthcare Reform Apply to You? 0 2
2012-08-09 Learning to Let Go 2 4
2012-08-02 IVIG: You're Not Alone 177 3.2
2012-07-26 Supporting Teens with Chronic Illness 3 None
2012-07-19 The Evolution of Goals and Dreams 2 5
2012-07-12 Embracing Carpe Diem 6 5
2012-07-05 From Teacher to Advocate 8 5
2012-06-28 Ask Yourself Why 2 3
2012-06-21 Diagnosing and Treating Myasthenia Gravis 10 5
2012-06-14 Make Peace and Let it Go! 3 5
2012-06-07 What Is Your Self-Care Account Balance? 0 None
2012-05-31 Can a History Lesson Foretell IG's Future? 2 5
2012-05-24 Summer Travel Nutrition 0 None
2012-05-17 Taking Medical Symptoms Seriously 1 4
2012-05-10 Taking Risks 1 4
2012-05-03 The Power of Shared Experience 1 None
2012-04-26 Treated or Mistreated? The Uncertainty of Treatment 3 None
2012-04-19 Treating Infusion Side Effects 162 3.3
2012-04-12 My Child's Advocate 0 None
2012-04-05 Spring Clean Your Medicine Cabinet 0 None
2012-03-29 Enter IG Living Second Annual Essay Contest! 0 None
2012-03-22 Multiple Sclerosis - No Longer Untreatable 0 None
2012-03-15 Not Medically Necessary 1 5
2012-03-08 Will Justice (and the Justices) Prevail? 1 None
2012-03-01 Learning to Be Assertive Despite the Fatigue of Illness 3 5
2012-02-23 My Mom's Kryptonite 3 5
2012-02-16 Chronic Illness Before the Diagnosis: You're Not Crazy. Trust Yourself. 14 2.5
2012-02-09 Inside Out Socks 1 None
2012-01-26 Disagreeing Without Being Disagreeable 5 None
2012-01-05 10 Ways to Care for Your Marriage When You Have a Chronic Illness 0 5
2011-12-08 Should Physicians Pay Patients for Waiting? 2 4
2011-11-17 10 Things to Say to a Sick Friend 2 4.7
2011-11-10 A Veterans' Day Tribute to Those Who Have Helped Us in Our Battle with Immune Disease 2 5
2011-10-20 Giving Patients Direct Access to Test Results: Is It a Good Idea? 13 5
2011-10-13 We Tip Our Hats to Those Who Give 2 None
2011-10-06 Sickness and Suffering 0 4
2011-09-29 Double Check Your Medical Bills 0 5
2011-09-22 All the Good Spots Are Taken 4 None
2011-09-08 Putting a Face On an Invisible Disease 2 5
2011-08-11 That is Not What I Meant 0 None
2011-08-04 Maybe It's Not the Patient Who Is Difficult 1 5
2011-07-28 What Would You Do If It Were You, Doc? 0 4.5
2011-07-21 Genetic Testing: What Is it? 2 4
2011-05-12 Follow the Profit 0 None
2011-04-01 Wasteful Healthcare Regulations 2 None
2011-02-04 Am I My Brother’s Keeper? 8 5
2010-12-03 How Does Your Doctor Rate? 9 5
2010-09-24 To the Naysayers of Healthcare Reform: Imagine Walking in the Shoes of a Patient with a Chronic Illness 8 5
2010-08-27 Preauthorization Not Required 4 None
2010-07-23 Lysol, Luggage and Lodging-Oh, My! 1 5
2010-07-02 Denied By Mistake! A Reimbursement System That Needs Fixing 1 5
2010-06-18 Meeting Your Medical Match 4 3.7

RSSPeople We Admire (14)

Date Title Comments Rating
2016-03-10 Happy Anniversary, IG Living! 0 5
2016-01-28 Learning to Love Valentine’s Day 0 5
2015-12-31 A Chance to Participate in a Gene Study for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 0 None
2015-12-01 10 Indispensables for Those with Chronic Pain and Illness 1 5
2015-11-05 9 Things to Say to a Loved One with a Chronic Illness 1 4
2015-10-15 Autoimmune Disease: The Importance of Knowing Your Family Health History 0 None
2015-10-01 PANDAS/PANS Awareness Week 0 None
2015-07-09 A Look Back at the IDF National Conference 0 4
2015-06-24 The Road to New Orleans 1 3.5
2014-11-21 Let It Out 0 3.5
2012-07-05 From Teacher to Advocate 8 5
2012-04-05 Spring Clean Your Medicine Cabinet 0 None
2011-09-08 Putting a Face On an Invisible Disease 2 5
2010-06-11 Raised in Captivity 10 5

RSSSpeaking Out (49)

Date Title Comments Rating
2019-02-21 What’s In the Glass? 0 5
2019-01-03 The Resolution 0 None
2018-09-20 People Heal and Transform Just Like Sequoias 0 None
2018-09-06 Life Happens 0 None
2018-05-17 Diseases Are Not a Competition 0 None
2018-04-19 Are Your Prescriptions Cheaper Without Insurance? 0 None
2018-04-05 PI Shouldn’t Be Compared with Other Diseases 2 5
2018-03-01 Cold vs. Flu 0 None
2018-02-15 Top 24 Workplace Accommodations for Individuals with Autoimmune Conditions 0 None
2018-01-18 Should I Tell My Employer About My Autoimmune Condition? 1 None
2018-01-04 Is Autoimmune Disease a Disability? 0 5
2017-12-21 How to Best Enjoy the Holidays Despite Chronic Illness 0 4
2017-12-07 SSDI vs. SSI 0 5
2017-11-02 The Doctor-Delayed Diagnosis 4 None
2017-10-05 The Psychological Implications of "Everything, Everything" 1 4
2017-04-20 IG Living in the Workplace - “I Own It!” 0 None
2017-03-16 Qualifying for Social Security Disability Benefits 0 None
2017-02-16 The Pre-Approval Blues 2 5
2016-12-15 Today Is That Dreaded Day! 0 5
2016-10-27 Through the Eyes of a Child 1 3
2016-06-30 5 Tips for Chronically Ill Patients on How to Act During a Doctor Appointment 1 4.5
2016-06-16 Tips for Surviving Summer with Chronic Illness/Chronically Ill Children 0 5
2016-05-26 7 Tips for Using Social Media 0 5
2016-05-19 A Mother’s Fear 1 5
2016-03-24 5 Tips on Coping with an Incurable Illness 0 3.8
2016-03-10 Happy Anniversary, IG Living! 0 5
2016-02-25 Living with CVID 20 4
2016-01-28 Learning to Love Valentine’s Day 0 5
2015-12-31 A Chance to Participate in a Gene Study for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 0 None
2015-12-01 10 Indispensables for Those with Chronic Pain and Illness 1 5
2015-11-05 9 Things to Say to a Loved One with a Chronic Illness 1 4
2015-10-15 Autoimmune Disease: The Importance of Knowing Your Family Health History 0 None
2015-10-01 PANDAS/PANS Awareness Week 0 None
2014-06-26 A Call for Open Access to Medical Journals 6 5
2014-03-13 Enchantment 7 5
2013-10-03 Update: Disneyland No Longer Issuing Disabled Passes 1 5
2012-10-18 Confronting Chronic Rudeness 10 5
2012-08-16 Do the Consumer Protections Under Healthcare Reform Apply to You? 0 2
2012-07-05 From Teacher to Advocate 8 5
2012-04-26 Treated or Mistreated? The Uncertainty of Treatment 3 None
2012-03-08 Will Justice (and the Justices) Prevail? 1 None
2011-11-10 A Veterans' Day Tribute to Those Who Have Helped Us in Our Battle with Immune Disease 2 5
2011-10-20 Giving Patients Direct Access to Test Results: Is It a Good Idea? 13 5
2011-09-29 Double Check Your Medical Bills 0 5
2011-08-11 That is Not What I Meant 0 None
2011-07-28 What Would You Do If It Were You, Doc? 0 4.5
2011-07-14 Confronting Chronic Rudeness 10 4
2011-02-11 There’s a Fee for That 7 None
2010-10-29 Overcoming Adversity: Learning by Example 2 None

RSSSupport & Encouragement (198)

Date Title Comments Rating
2019-01-03 The Resolution 0 None
2018-11-15 Assessing Your Loved One’s Long-Term Care Needs and the Potential Costs 0 None
2018-11-01 Thanksgiving Survival Guide 0 None
2018-09-20 People Heal and Transform Just Like Sequoias 0 None
2018-09-06 Life Happens 0 None
2018-08-02 Dangling: Don’t Settle for False Hope in Treatment 0 None
2018-07-19 You Are Worthy 0 None
2018-06-21 Keep Your Cool This Summer 0 None
2018-05-03 Living With Chronic Pain: A Pocket Guide to Relief 0 None
2018-04-05 PI Shouldn’t Be Compared with Other Diseases 2 5
2018-03-15 Be Kind 3 4.7
2018-03-01 Cold vs. Flu 0 None
2018-02-01 Surviving Valentine’s Day with a Chronic Illness 0 4
2018-01-04 Is Autoimmune Disease a Disability? 0 5
2017-10-05 The Psychological Implications of "Everything, Everything" 1 4
2017-07-20 A Zebra at Disney 3 None
2017-07-06 How Medicare Works with Other Insurance 2 5
2017-04-06 How to File a Complaint Against Your Medicare Drug or Health Plan 0 5
2017-03-02 How Not to Feel Like a Victim When Managing Chronic Illness 5 None
2017-02-02 Tips for Reducing Chronic Pain 1 None
2016-12-15 Today Is That Dreaded Day! 0 5
2016-10-27 Through the Eyes of a Child 1 3
2016-10-13 Get Free Help with Your Medicare 0 5
2016-09-29 Halloween Memories 0 None
2016-08-25 PI and Sun Exposure: My Lesson 0 5
2016-08-18 Know Your Medicare Rights 0 None
2016-06-16 Tips for Surviving Summer with Chronic Illness/Chronically Ill Children 0 5
2016-05-19 A Mother’s Fear 1 5
2016-04-28 Rules for Living with Multiple Diagnoses 6 5
2016-04-21 Sick But Social: The Faithful Friend 3 5
2016-03-24 5 Tips on Coping with an Incurable Illness 0 3.8
2016-03-10 Happy Anniversary, IG Living! 0 5
2016-02-25 Living with CVID 20 4
2016-01-28 Learning to Love Valentine’s Day 0 5
2015-12-31 A Chance to Participate in a Gene Study for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 0 None
2015-12-01 10 Indispensables for Those with Chronic Pain and Illness 1 5
2015-11-05 9 Things to Say to a Loved One with a Chronic Illness 1 4
2015-10-01 PANDAS/PANS Awareness Week 0 None
2015-08-27 Relocating: Steps to Success 0 4
2015-07-09 A Look Back at the IDF National Conference 0 4
2015-05-21 PI Parents: We’re No Different 0 None
2015-03-19 Popcorn Tuesdays 1 4.5
2015-03-05 Caregiving for the Caregiver 0 4
2015-01-08 Staying Positive with Chronic Illness 0 4
2014-09-25 Third Place Essay Contest Winner - It's Not About Me 0 4.8
2014-09-18 2nd Place Essay Contest Winner - The Other Side of the Knife 1 5
2014-08-14 Back to School with PI 0 5
2014-07-31 Seeing Yourself as Healthy 4 5
2014-07-10 “It’s Not You, It’s Me”: Are All Friendships Worth Pursuing? 15 2.8
2014-07-03 A New Independence 3 5
2014-06-19 The Words We Use: Language and the Patient Experience 2 4.5
2014-06-12 Learning to Speak My Truth 6 5
2014-06-04 Some Doctors Are Worth Stalking 3 5
2014-05-29 Vacation Dread? 4 5
2014-05-22 Illness-Free for 72 Hours: What Would You Do? 0 4
2014-05-15 At a Loss for Words 3 5
2014-05-08 Just Push 6 5
2014-05-01 Fighting the Fog 0 4.8
2014-04-25 Real or Imagined 4 5
2014-04-17 Ignoring Health Signs; Pushing Through 2 4.3
2014-04-10 IVIG: Is There No Place Like Home? 16 4.9
2014-04-03 Where Did Everyone Go? 5 4.8
2014-03-20 Hypochondriac 7 5
2014-03-06 Achievements 8 5
2014-02-27 Don’t Let Disappointment Reign 1 5
2014-02-20 How Do You Do It? 0 5
2014-02-13 Learning to Love Valentine's Day 2 5
2014-02-06 Drawing Inspiration from the Winter Games 0 5
2014-01-30 Never Bet Against the Underdog 1 5
2014-01-23 Letting Them Fly 1 5
2014-01-16 Starting a Support Group 4 None
2014-01-09 Constant Guilt 7 5
2014-01-02 Our Friends, Our Village 2 5
2013-12-26 Resolution Reality Check 2 4.5
2013-12-19 Grateful to be Grateful 2 5
2013-12-12 Ten Strategies for an Illness Free Holiday 2 5
2013-12-05 Friendship: The Best Thing in Life 2 5
2013-11-21 Lightning Can Strike Twice ... or More Often 1 5
2013-11-14 There Is No Normal 0 5
2013-10-31 A Good Deed Never Goes Unrewarded 1 4.8
2013-10-24 Role Reversal: My Journey from Caregiver to Patient 2 5
2013-10-17 Don't I Know You From Somewhere? 1 None
2013-10-09 Coping With Loss 1 5
2013-09-26 Be the Change 1 5
2013-09-19 Essay Contest 2nd Place - I am a Patient 3 5
2013-09-12 Essay Contest Winner! - A Father's Pride 5 5
2013-09-05 Perception 2 4.5
2013-08-29 Defining a Miracle 3 5
2013-08-22 The Impoliteness of Strangers 5 4.7
2013-08-14 Having Friends Who Understand Makes Me Feel Better 4 4.8
2013-08-08 Location, Location, Location: Deciding Where to Live with Chronic Illness 9 5
2013-08-01 Kindness Can Change the World 2 4.8
2013-07-25 Life Lessons 1 None
2013-07-18 Using Power for Good 1 None
2013-07-11 Hello Baltimore! 3 5
2013-07-03 A Journey of a Thousand Miles 2 5
2013-06-27 Dating Doctors 4 4.2
2013-06-20 Looking on the Bright Side 6 4.7
2013-06-10 IG Living Fan Spotlight - Ida Wagner 8 4
2013-06-06 Taking Advantage of our Disadvantages 7 5
2013-05-29 Road Blocks 9 5
2013-05-23 Vulnerability and the Zombie Apocalypse 6 5
2013-05-09 Angels In Action 3 5
2013-05-02 Learning To Cope With Pain 5 5
2013-04-18 (Don’t) Put on a Happy Face 10 4
2013-04-11 Needles & Spines 8 5
2013-04-04 Get the Word Out 4 4.5
2013-03-21 Sitting Bedside 1 5
2013-03-14 Rise, Shine and Pray for Strength 5 5
2013-03-07 Coping with Diagnosis: A Journey of Acceptance 3 5
2013-02-21 The Last Best Cure 0 4
2013-02-14 Pills, Pills and More Pills 5 5
2013-02-07 The Balance Between Education and Illness 0 3.7
2013-01-31 Torn: What to Do When She Is Sick 1 5
2013-01-24 The Joys and Challenges of Parenting Teens 0 5
2013-01-17 New IGL Teen Supports Kids with Chronic Illness 0 5
2013-01-10 Lab Day Escapades 2 4.5
2013-01-03 Five Ways to Fight Fatigue 6 2.7
2012-12-27 Set S.M.A.R.T. Goals 3 3.3
2012-12-20 Music for My Soul 0 None
2012-12-12 Here’s How You Can Help 1 4
2012-12-05 Invisible in a World of Wellness 10 4.5
2012-11-28 Dispose of Stress 2 3.5
2012-11-19 Giving Thanks 5 5
2012-11-15 When Life Hands You Lemons 5 2.6
2012-11-08 Leave Worry for Another Day 5 5
2012-11-01 Never Give Up! 2 4.2
2012-10-25 Avoid Holiday Season Sniffles 0 1
2012-10-18 Confronting Chronic Rudeness 10 5
2012-10-11 Why Being a “Good Patient” May be Bad for Your Health 3 None
2012-10-04 Healing Hearts through Paws 5 4
2012-09-27 The Journey of a Single Step 4 5
2012-09-20 The Journey of Risks 1 5
2012-09-13 Lessons from the Deep 2 5
2012-09-06 Let's Get Connected 11 5
2012-08-30 Mirror Image 1 None
2012-07-26 Supporting Teens with Chronic Illness 3 None
2012-07-19 The Evolution of Goals and Dreams 2 5
2012-07-12 Embracing Carpe Diem 6 5
2012-07-05 From Teacher to Advocate 8 5
2012-06-28 Ask Yourself Why 2 3
2012-06-14 Make Peace and Let it Go! 3 5
2012-06-07 What Is Your Self-Care Account Balance? 0 None
2012-05-17 Taking Medical Symptoms Seriously 1 4
2012-05-03 The Power of Shared Experience 1 None
2012-04-26 Treated or Mistreated? The Uncertainty of Treatment 3 None
2012-04-12 My Child's Advocate 0 None
2012-03-22 Multiple Sclerosis - No Longer Untreatable 0 None
2012-03-15 Not Medically Necessary 1 5
2012-03-01 Learning to Be Assertive Despite the Fatigue of Illness 3 5
2012-02-23 My Mom's Kryptonite 3 5
2012-02-16 Chronic Illness Before the Diagnosis: You're Not Crazy. Trust Yourself. 14 2.5
2012-02-09 Inside Out Socks 1 None
2012-01-26 Disagreeing Without Being Disagreeable 5 None
2012-01-19 Cyberdating with a Chronic Illness: Not Easy, But with Perks! 1 None
2012-01-05 10 Ways to Care for Your Marriage When You Have a Chronic Illness 0 5
2011-12-29 New Year's Resolutions for People with Chronic Illness 4 5
2011-12-22 'Twas The Night Before IG Day 3 4.2
2011-12-15 Rising Above the Negativity 0 None
2011-12-08 Should Physicians Pay Patients for Waiting? 2 4
2011-12-01 A Message to My Younger Self 1 4
2011-11-23 Overindulge on Gratitude 1 5
2011-11-17 10 Things to Say to a Sick Friend 2 4.7
2011-10-27 Five Tips for Living Well with Chronic Illness 5 5
2011-10-13 We Tip Our Hats to Those Who Give 2 None
2011-10-06 Sickness and Suffering 0 4
2011-09-22 All the Good Spots Are Taken 4 None
2011-09-15 Humanity and Grace 2 5
2011-09-01 Live Like You Were Living 7 None
2011-08-25 Being Honest 2 5
2011-08-18 Living Well with IVIG 6 5
2011-07-14 Confronting Chronic Rudeness 10 4
2011-07-07 Dear Health Diary 1 4
2011-06-30 Living a Normal Life 6 5
2011-06-23 Rejuvenation Does a Body Good 0 2
2011-06-16 10 Tips from 10 Years Sick 7 4
2011-06-09 My Brain is Fried: Inside Chronic Illnesses 5 5
2011-06-02 A Caregivers Guide to Surviving Chronic Illness 2 5
2011-05-26 DNA Doesn't Make Family 0 5
2011-05-05 Confiscate Your Moments 5 5
2011-04-28 The Power of Perseverance 2 5
2011-04-21 An Ode to Chronic Illness 1 4.7
2011-03-25 Knock Knock 1 2.5
2011-02-25 Because I Am His Mother 2 5
2011-01-28 No Penguin Left Behind 1 None
2011-01-14 We Are All a Little Odd 1 5
2011-01-07 Time Most Valued 5 4
2010-12-30 Have a Happy New Year 2 None
2010-12-10 Grandma Jo’s Candy Dish 2 None
2010-11-26 Giving Thanks 3 None
2010-11-12 Actions Versus Intentions 2 None
2010-10-29 Overcoming Adversity: Learning by Example 2 None
2010-10-19 My Jack-In-the-Box 3 None
2010-10-08 It Must be My Fault 3 None
2010-09-17 Avoiding Trees 7 None
2010-09-03 Having and Being a Forever Friend 1 None
2010-07-16 Am I a Caregiver? 2 5
2010-07-09 Love with Fur 3 None

RSSTeen (12)

Date Title Comments Rating
2016-03-10 Happy Anniversary, IG Living! 0 5
2016-01-28 Learning to Love Valentine’s Day 0 5
2015-12-31 A Chance to Participate in a Gene Study for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 0 None
2015-10-01 PANDAS/PANS Awareness Week 0 None
2013-07-11 Hello Baltimore! 3 5
2013-05-02 Learning To Cope With Pain 5 5
2013-04-25 Indebted to the Doctor Who Saved My Life 6 3.6
2013-03-14 Rise, Shine and Pray for Strength 5 5
2013-02-07 The Balance Between Education and Illness 0 3.7
2013-01-31 Torn: What to Do When She Is Sick 1 5
2013-01-24 The Joys and Challenges of Parenting Teens 0 5
2013-01-17 New IGL Teen Supports Kids with Chronic Illness 0 5

Uncategorized (2)

Date Title Comments Rating
2019-11-21 Holiday Calories Do Count 0 None
2013-05-16 You DO Listen, You DO Care 6 5

Total

339 posts
1316 comments
543 raters
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