Connect with others and get your questions answered from experts on a variety of topics related to living with a chronic illness.
Topic: IVIG updates for 2018
Guest Speaker: Leslie J. Vaughan, RPh
To participate in the next Reader Teleconference, complete the registration form to be added to our email invitation list.
Let's Talk: Julian Vilaranda
Julian Vilaranda, who was diagnosed with PANDAS in 2015, continued to be plagued by symptoms despite treatments. Now, with IVIG therapy, he is showing positive change, and he and his family have hope for his future....
Exploring the Allure of Aromatherapy
When you live with primary immunodeficiency (PI), medication regimens and treatment plans are typically deeply rooted in traditional medical science. This is why being offered an alternative treatment like aromatherapy tends to be dismissed at first glance as unhelpful or even silly. But, not so fast....
Ask the Experts
Reader: Does Chemotherapy Cause Long-Term Low IgG Levels?
Leslie: Cladribine does cause a reduction in both T cells and B cells, so it would make sense you would have low IgG levels around the time of chemotherapy. While we were unable to locate articles that discuss the long-term reduction of B cells secondary to the use of cladribine, there is a lot of...
Meet the Staff
Bob Geng, MD, MA
Assistant Professor, Division of Allergy & Immunology
University of California, San Diego
Erika Lawrence, PhD
Associate Professor Department of Psychology University of Iowa
Todd Levine, MD
Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix
Assistant Professor of Clinical Neurology University of Arizona
Co-founder of the Jeffrey Modell Foundation
Marc Riedl, MD, MS
Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego
Ask the Experts – Get answers from experts about issues related to immune-mediated diseases?
Advocacy Groups – Living with a chronic illness? Reach out, seek help and find a community.
Take Action – Everyone can advocate for healthcare treatment and reimbursement issues.
Share Your Story – Help others by sharing your experience with chronic illness!
Reader’s Online Forum – Have your questions answered immediately from experts, through this live interactive forum